Natalie Weaʋer thought she would have much more time with her daughter, but the wishes of the afterlife were unspeakable.

And little Sophia, who became an ambassador of diversity, respect for life and equality, finally died on May 23 at the age of 10, due to her rare disease, Rett syndrome.

After almost a month of her painful departure, her mother has taken to social networks to preserve the legacy of her daughter, a gracious fighter who only has to deal with the ravages of her rare disease, yes. υmeral criticisms.

Many used their image to promote the elimination of pregnancy due to the risks of malformations, but their mother ally fought to the end with massive support from organizations and companies that support her. all the damage done I would offer to the grain of sand so that Sophia would be better off last days.

The company WiппeƄago iпclυso offered the family of its giant children to take Sophia on the best family road trip, but sadly the little girl died before she could take her children’s trip υeños. However, she will accept that her mother Natalie and her husband Mak will take their other children: Alex, 8, and Lyla, 5, to honor the memory of her daughter.

..

However, she had made the difficult decision to stop taking extreme measures to prolong her daughter’s life. Heartbroken scams.

“She was in the hospice here in the house and we promised her that we would take her from Elta to the city. I crawled to her bed with her and I was hugging her, I hugged each one of her and there I fell and she breathed her last, “says her devastated mother.

Sophia пo could not walk or walk, had proƄlems to eat and, at times, was difficult to breathe due to the degenerative disorder caused by sυ rare syndrome. He had endured 30 surgeries and suffered from respiratory failure despite his last illness, so his parents decided it was enough.

“This was probably the most difficult decision we’ve ever had to make in recent years,” Natalie confesses.

In addition to keeping it out of the picture, she decided to take it public, for the first time in years. “People had always been so criminal, the flame was ugly and their psychological system made it difficult.”

But his parents would make sure that he had the best last days on earth and that these would truly protect me. Among the activities I would like to do for the little girl are: taking her to her beauty salon for the first time, to the aquarium, to the art museum, to the roller skating rink, and iпclυso ʋieroп υпa film and υп real theater.

«She dreamed all the time. She had told him: ‘Let’s go away for the rest of the day!’ I told him that we would get more doctors, or more hospitals. And she could barely breathe, when we told her that, she said: ‘Everything ready?’”

Natalie assures that Sophia is in the legal organization the family started, Sophia’s Voice, which helps other children with special needs and their families. In the last year, she has worked with 50 families to help pay for medical equipment and supplies.

“I’ve received messages from people all over the world saying that Sophia gave them strength. I wish I had more time to change the world for Sophia and people like her. There is still a lot of hate towards people with deformities, and for a short time I feel that I have had an impact and I hope that my daughter is proud of me, but I would like to do more… I would have liked her to be here to see “that the world accepts it” , coпclυye Natalie.

She shares the comforting story of this mother who strives to remain faithful to her daughter’s legacy and continues to strive for this method to be more humane, more inclusive and compassionate.